Research Design Service: East Midlands
National Institute for Health Research
« back

Article: A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards

  Created on Wednesday, 12 Apr 2017. Posted in Public Involvement

Researchers are encouraged to involve the public as early as possible in the process of designing their studies, but this work is not subject to ethical review. This paper looks at ten areas where ethical issues may arise and has used them to develop a framework to help researchers and the public work ethically together in the early design stages.

This paper is an opinion piece informed by first-hand experiences of providing advice on involving the public as part of our National Institute for Health Research (NIHR) Research Design Service (RDS) roles. It also builds on consultations with approximately 20 lay people and 25 researchers during public involvement workshops held in the last 3 years in the East Midlands region.