Created on Thursday, 02 Mar 2017. Posted in Literature
Removing the ‘gag’: involving people with dementia in research as advisers and participants Jenni Brooks, Department of Psychology, Sociology and Politics, Sheffield Hallam University; Nada Savitch, Innovations in Dementia; Kate Gridley, Social Policy Research Unit, University of York
People with dementia are often excluded from taking part in research because of perceived difficulties in consent, capacity and communication. We argue that involving people with dementia in research is important, and describe how we involved people with dementia as both advisers and participants in research about the use of life story work.
Researchers worked in partnership with Innovations in Dementia, who supported a network of advisers with dementia. Focus groups were arranged to ensure meaningful contributions by people with dementia. It was difficult to use standardised quality-of-life measures, and we describe the challenges faced with capacity and consent, recruitment and selection, and data collection. We suggest there is a need for (a) new tools for measuring quality of life of people with dementia which do not require participants to respond in prescribed ways, and (b) ethics and consent processes which are appropriate for non-medical research and which facilitate the involvement of people with dementia.
Read the full paper on: http://the-sra.org.uk/wp-content/uploads/social-research-practice-journal-issue-03-winter-2017.pdf (see page 3 - 14)
Created on Monday, 30 Jan 2017. Posted in Literature
The latest NIHR podcast is entitled ‘The culture of research’ and is a 10-12 minute podcast interview with Catherine Joynson, Assistant Director at the Nuffield Council on Bioethics. Catherine talks about the culture of scientific research, leading on from the Nuffield report published in 2015.
Across the series of 7 podcasts, listeners will hear the thoughts and opinions of a whole range of different people involved in clinical research. The podcast series also includes a virtual journal club, which involves the discussion of a recent, open-access paper to be discussed.
The Systematic Review Toolbox is a searchable catalogue of tools that can be used to help you do a systematic review. Users can perform a simple keyword search (i.e. Quick Search) to locate tools, a more detailed search (i.e. Advanced Search) allowing users to select various criteria to find specific types of tools and submit new tools to the database.
The Toolbox also contains checklists, guidelines and reporting standards for systematic reviews.
Cochrane is runing a 'Understanding Evidence' campaign in partnership with Students4BestEvidence. The main thrust of the campain centres around the ideas that underpin the way we think about evidence.
The campaign will share resources and initiatives that can help with making sense of evidence, and highlight opportunities to get involved with others with an interest in evidence.
The campaign launches with a special week of blogs from 4th October 2016 and social media post using #UnderstandingEvidence.
This themed review brings together NIHR research on each aspect of type 2 diabetes care. It features:
A new magazine called The Researcher launched in July. The digital publication has been created for early career researchers by early career researchers aims to raise awareness of research careers among nurses, midwives and allied health professionals.
Working in collaboration with Health Education England (HEE), NHS North West Research and Development and a team of early career researchers, along with award winning writer Rob Young, the magazine illustrates the real-life stories of what it is like to undertake a research career.
Two further editions of The Researcher are planned over the next six months. The first edition has the theme of 'Breaking boundaries'
This report is the output from a meeting in London in June 2015 that was funded by The Health Foundation, The Medical Research Council, the National Institute for Health Research and Universities UK. It brings together current approaches and methodologies for the evaluation of complex interventions in healthcare, and considers future challenges. The report covers 8 themes, including patient-reported outcome measures, healthcare equity, both qualitative and quantitative methods, and evidence synthesis.
An very good introduction to cost-utility analysis for those wanting to gain a better understanding of one of the most widely-used form of economic evaluation in healthcare. Full article
Created on Tuesday, 22 Mar 2016. Posted in Literature
A new service offering specialist expert advice for those producing complex systematic reviews is now available. The Complex Review Support Unit has been set up by the NIHR Systematic Reviews Programme and is a collaboration between London School of Hygiene and Tropical Medicine, University of Leicester and University of Glasgow, which is the lead. It can provide advice on methodological fields such as Diagnostic Test Accuracy, Economic Evaluations or Network Meta-Analysis.
To access this support you need to fill in an application form and the proposed review must have already secured funding. Applications will be reviewed on an ad-hoc basis.