Research Design Service: East Midlands
National Institute for Health Research

Latest News

Article: A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards

  Created on Wednesday, 12 Apr 2017. Posted in Public Involvement

Researchers are encouraged to involve the public as early as possible in the process of designing their studies, but this work is not subject to ethical review. This paper looks at ten areas where ethical issues may arise and has used them to develop a framework to help researchers and the public work ethically together in the early design stages.

This paper is an opinion piece informed by first-hand experiences of providing advice on involving the public as part of our National Institute for Health Research (NIHR) Research Design Service (RDS) roles. It also builds on consultations with approximately 20 lay people and 25 researchers during public involvement workshops held in the last 3 years in the East Midlands region.

Co-producing public involvement training with members of the public and research organisations in the East Midlands: creating, delivering and evaluating the lay assessor training programme

  Created on Wednesday, 12 Apr 2017. Posted in Public Involvement

This paper reports on setting up a training programme for lay assessors delivered collaboratively by research organisations across the East Midlands region.

A recognised method for public involvement consists of consulting with patients and the public for their views on various research materials. To support lay people to be able to carry out these tasks they require basic knowledge of how research works and to be familiar with terminology and good practice. The training programme was developed to support this learning and evolved from participant feedback and consultation.

Masterclass on engaging with seldom-heard groups

  Created on Monday, 27 Mar 2017. Posted in Public Involvement

EMAHSN run regular masterclasses on how to effectively engage underserved communities. Contact Katie Swinburn for more information.

Listen to the most recent session focusing on Gypsy Roma Traveller communities:

CERTAIN Patient Advisory Network's INSPIRE Research Portal

  Created on Monday, 27 Mar 2017. Posted in Public Involvement

The portal is an online library of resources designed for patients and researchers partnering on patient-centered outcomes research (PCOR), healthcare studies that actively engage patients in the research process from start to finish. The purpose is to provide easy access to existing tools and resources for this research community.

Developing national standards for public involvement in research

  Created on Monday, 13 Mar 2017. Posted in Public Involvement

How do you assess the quality of public involvement in your research? How does a research organisation know if it is doing good, bad or indifferent public involvement? These are questions at the top of the agenda for a partnership between the NIHR and Health and Care Research Wales working with the Chief Scientist Office in Scotland and the Public Health Agency in Northern Ireland. The collaboration is looking to develop a set of national, self-assessment standards for public involvement in research for England and Wales. Having a set of core standards can help everyone to improve the quality and consistency of public involvement in research by working towards, delivering or exceeding current good practice. 

Over the summer, the team plan to involve potential users of the standards – members of the public, researchers, public involvement leads, research managers, funders and others – in reviewing and improving a set of draft standards and indicators.If you're interested in getting involved, visit the project website for more information.  

Going the Extra Mile: public involvement workshop report

  Created on Wednesday, 22 Feb 2017. Posted in Public Involvement

In December 2016, the Central Commissioning Facility hosted a workshop that began to explore this in relation to the NIHR's 10 year vision and ambitions for public involvement, as set out in Going the Extra Mile.

The workshop report:

  • Outlines the focus of the day

  • highlights some of the issues raised in discussion

  • provides links to access all the slide sets and reports from the day.


Guidance for Embedding Patient and Public Involvement Champions within Applied Health Research Programmes

  Created on Monday, 20 Feb 2017. Posted in Public Involvement

This Guidance has been written by CLAHRC Wessex for:

  • researchers looking for a blueprint to support the embedding of patient and public involvement within their applied health research and implementation programmes
  • experienced patient and public contributors wishing to assume a more strategic role within programmes of applied health research
  • health research and implementation organisations (including managers and patient and public involvement leads) seeking to enhance their work with a sustainable model of public involvement

Co-production: Old wine in new bottles or vintage public involvement?

  Created on Wednesday, 15 Feb 2017. Posted in Public Involvement

Co-production is a concept which has been used to describe a partnership between public and service providers as they jointly design and/or improve health and social care services.

This article (exert from Involve newsletter) reports on the outcomes from a round table event, attended by public and NIHR staff to explore various views, thoughts and opinions on the question of ‘what is co-production in research?’

Health research has two sides and one of them is you

  Created on Wednesday, 15 Feb 2017. Posted in Public Involvement


The NIHR has launched a new #twosides campaign urging patients and the public to get actively involved in health and social care research which affects the lives of millions of people. 

Featuring an iconic split face image, the #twosides campaign highlights ways for people who aren’t medical or academic professionals to make their voices heard. Links are offered to opportunities to share patient and carer experiences and ideas for making a difference to the health and wellbeing of families, friends, colleagues and communities.

  • Suggest a research question
  • Influence decision making
  • Join a study team
  • Become a study participant

Improving how patients and the public can help develop NICE guidance and standards

  Created on Thursday, 05 Jan 2017. Posted in Public Involvement

The National Institute for Health and Care Excellence (NICE) has launched a set of new proposals to improve the way we involve lay people in developing our guidance and standards. The draft proposals are now available and they are asking what people think of the proposed new principles and ways of working before they are finalised.

The consultation is open for comments and will run until 28 February 2017.