This project was commissioned by the James Lind Initiative to look at young people’s involvement in the design and delivery of NIHR studies. The report makes recommendations on how NIHR could find out more about who is involved in research and how, as well as what difference this involvement makes to research and to the young people involved.
In support of Children’s Mental Health Week, NIHR have created a resource for children and young people to learn about mental health research and why it’s so important. The new resource talks about NHS research and how children and young people can get involved and how their personal experience makes a difference.
Created on Monday, 01 Feb 2016. Posted in Young People
INVOLVE has added two new resources to their collection on involving children and young people in research
This newsletter looks at the work NIHR CLAHRCs are doing in the area of early years, children and young people.
Highlights from the East Midlands:
Created on Wednesday, 25 Nov 2015. Posted in Young People
September 2013 witnessed a milestone moment in the involvement of children and young people in clinical research across the UK: for the first time, young people, parents, researchers, and practitioners gathered at a national event to discuss how children and young people can be meaningfully involved in clinical research.
In this blog, Kate Harvey from the Nuffield Council on Bioethics reflects on two years of progress in involving children in the design and delivery of medical research.
Generation R is a National Young Persons’ Advisory Group funded by the NIHR that supports the design and delivery of paediatric research in the UK.
YPAG now consists of five regional groups based in Liverpool, Birmingham, London, Bristol and Nottingham, plus one topic-focused group looking at Mental Health based in London.
They are all made up of 10-15 members who are aged between 8-19. The groups meet every six weeks either at weekends, in the evenings, or during school holidays and come together for a national meeting once a year. Their views feed into the design and delivery of research in children.