Research Design Service: East Midlands
National Institute for Health Research

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The SHARED study: public co researchers in dementia research

  Created on Monday, 27 Nov 2017. Posted in Public Involvement | Co-production

Co-production is the new buzz word in research but many are unsure as to what it actually entails. Take a look at The SHARED study which is an example of how public co-researchers were involved in developing carer and patient-led recommendations for people with dementia or memory loss returning home from hospital. The article illuminates the experience of public and academic researchers in delivering this research together.

“Public engagement: a practical guide” from Sense about Science and NIHR

  Created on Monday, 27 Nov 2017. Posted in Guidance | Public Involvement

The new best practice guide is aimed at helping other researchers involve the public in communicating findings from the earliest stages of their projects and on the most challenging of subjects. It features a five-step process to present research information in a way that is shaped from the outset by people who will use it. The advice given ranges from initial scoping of the subject to planning and user-testing materials to present findings in a clear and accessible way.

Update on payment for involvement in research - an agreed statement and INVOLVE's understanding of the changes to HMRC Inland Revenue IR35 regulations

  Created on Tuesday, 21 Nov 2017. Posted in Public Involvement

Changes to HMRC regulations on ‘contractors and intermediaries’ have led to some institutions processing payments for involvement in research through PAYE.  INVOLVE has discussed these changes with HMRC and the Dept of Health’s Tax Advisor, and produced an agreed statement along with INVOLVE’s understanding of how these regulations might relate to payment for involvement.

INVOLVEs draft Guidance about Co-Production in research

  Created on Tuesday, 21 Nov 2017. Posted in Public Involvement | Guidance

This guidance identifies some key principles and features involved in co-producing research. Co-producing research at its simplest means people working in partnership to design, develop and deliver research and knowledge. However Co-producing research is a way of working that requires

  • a change in the power dynamics between researchers, professionals and the public so that there is an equal partnership and joint ownership of key decisions in both the research and the development of knowledge
  • an emphasis on the relationships, new knowledge and outcomes that emerge from the research process.


Understanding Plain English summaries. A comparison of two approaches to improve the quality of Plain English summaries in research reports

  Created on Tuesday, 24 Oct 2017. Posted in Public Involvement | Dissemination | Design Tips

There is a need for the authors of research reports to be able to communicate their work clearly and effectively to readers who are not familiar with the research area. Because many researchers write using technical, specialised language, particularly in scientific reports, writing Plain English summaries (PESs) can be challenging. This study looked at how to improve the quality of PESs.

The quality of the three versions (original summary, rewritten summary and edited summary) were assessed in two ways. First, a group of people who were not specialists in the subject area read and rated how easy the summaries were to understand. Secondly, a well-known measure called the Flesch reading ease score to assess how easy the PESs were to read.

The results showed that the following methods resulted in the best readable PESs:

  • to employ a specialist to do the task
  • to offer more explicit information to researchers on how to write it. 

The full article can be read online in the BioMed Central Research Involvement and Engagement Journal

GRIPP - guidlines to help reporting on public involvement

  Created on Thursday, 07 Sep 2017. Posted in Public Involvement

GRIPP 2 is a set of guidelines developed and agreed (via international consensus) as useful for helping researchers to report about their public involvement in journals. It is the first international effort to improve the quality and transparency of reporting about public involvement.

As such it provides researchers a useful tool when writing their application for research and dissemination strategy/impact. It also offers useful pointers about where public involvement impact on individual research studies can be reported.

Consultation: draft national standards for public involvement in research

  Created on Monday, 10 Jul 2017. Posted in Public Involvement | Toolkit/Database

A set of national, core standards and indicators for public involvement (PI) in research that can be used by organisations, research projects and individuals to improve the quality and consistency of PI has been developed. The next stage is to engage a wide range of interested groups, organisations and individuals to help review and improve the draft standards and indicators.

Please visit the project website for more detailed information about the consultation process and to access all the resources that might be needed. The consulation will run intil 1 September.


Patient and Public Involvement and Engagement Plan 2016/18

  Created on Wednesday, 05 Jul 2017. Posted in Public Involvement

Public contributors bring a wealth of knowledge and insights to research based on their personal experiences as users of health and social care services and treatments. For example, who better to ask if a research question is relevant and important to patients and carers, than its potential beneficiaries? Or whether the frequency and timing of a series of tests proposed by researchers would actually be acceptable to the patients and carers that they plan to invite to take part in the research?

Each of our objectives are summarised in the Action Plan and cover the areas of:

  • Reach,
  • Support,
  • Knowledge,
  • Integration
  • Communication and accessibility

Research Involvement Toolkit

  Created on Wednesday, 21 Jun 2017. Posted in Public Involvement | Toolkit/Database

About the Toolkit:

  • This is a resource for researchers who want to involve people affected by cancer in their research (at any stage). It is not a resource to support researchers with engagement activities, or with recruiting to clinical trials. 
  • It aims to support researchers to plan, deliver and evaluate Public and Patient Involvement (PPI)
  • It’s designed to be easy to use and to meet the researcher needs surfaced in researcher surveys conducted by CRUK and also the Shared Learning Group for Involvement in Research 
  • The Toolkit has been developed to be open access – a single Username and Password has been created so that any researcher (or member of the public/staff) can access the Toolkit
  • The Toolkit will be reviewed and refined on an ongoing basis in order to respond to researcher needs and feedback.

Log in with the following username and password
Username: CRUK\InvolvementToolkit
Password: CRUKInvolvement

Report on evaluating the extent and impact of young people’s involvement in research

  Created on Tuesday, 20 Jun 2017. Posted in Public Involvement | Young People

This project was commissioned by the James Lind Initiative to look at young people’s involvement in the design and delivery of NIHR studies. The report makes recommendations on how NIHR could find out more about who is involved in research and how, as well as what difference this involvement makes to research and to the young people involved.