Equality, diversity and inclusion in Patient and Public Involvement and Engagement
Created on Tuesday, 12 May 2020.
Public Involvement |
As part of NIHR's commitment to actively and openly supporting and promoting equality, diversity, and inclusion (EDI) they've produced new Standard Application Form (SAF) guidance that includes improved requirements to will strengthen EDI and patient, public involvement and engagement (PPIE).
A framework for considering who might be involved in research
Created on Wednesday, 01 Apr 2020.
New INVOLVE guidance to be used as a framework to help make decisions about which public contributors you might involve in your research and why.
- There should always be clarity about the purpose of involving specific individuals or groups
- Including a diversity of views and perspectives often helps to improve the research
- Review the way the involvement role and opportunity has been structured to ensure there are not unintended barriers stopping other public contributors from engaging
- People can wear several hats and their contributions may be broader because of the range of their expertise
- The type of lived experience needed will vary depending on the focus of the research
Improving Care by Using Patient Feedback
Created on Thursday, 16 Jan 2020.
Public Involvement |
This review brings together nine recent NIHR studies looking at how NHS organisations use patient feedback to make improvements to services. Evidence ranges from online ratings to real-time feedback in different settings, from hospital wards to general practice and mental health.
This research can help health providers to make best use of patient surveys and other data from patients on their care. Studies found that more effort has been spent on collecting data, with less attention to how it can be used to improve services. Findings included the need to integrate patient experience data and activity with other quality improvement work in trusts. Research also shows the importance of positive feedback and how online and unsolicited responses can be used alongside survey data to make a difference.
Healthwatch reporting tool allows professionals to search patient experience reports
Created on Monday, 16 Dec 2019.
Public Involvement |
The reports library tool aims to help researchers search thousands of reports produced by local Healthwatch. Curently the tool holds 2,391 Healthwatch publications about health and care services, made up of over 420,000 views
What kind of information can you expect to find?
- Across the country, Healthwatch speak to people about their experiences of services, and how care could be improved.
- From mental health, to care homes, to people's experiences of leaving hospital, a whole host of subjects are covered in the reports library.
- There's a local Healthwatch in every area of the country and each one focuses on the issues that matter most to the people in their communities.
- You can also sign up to news alerts for new additions to the tool in your area
New best practice guidance for public involvement
Created on Tuesday, 09 Jul 2019.
Public Involvement |
NHS Health Research Authority have launched new guidelines on how to involve patients and the public well in research.
The new webpages introduce four key principles for best practice in public involvement:
- Involve the right people – people who have lived experience relevant to the health condition or social care situation being researched, and to the people the study will aim to recruit as participants
- Involve enough people to provide a reasonable breadth and depth of views on the issues that are likely to be important to the people the study will aim to recruit, and who it is intended to benefit
- Involve those people enough in as many aspects of the study as is feasible, productive, and appropriate to the research - and at the right times
- Describe in your application how it helps using the question specific guidance in the Integrated Research Application System (IRAS) to make it clear how involving people well helps to address potential ethical issues
New NIHR Patient Engagement in Clinical Development Service begins roll out
Created on Tuesday, 14 May 2019.
A new NIHR initiative is bringing patients and life science companies together earlier in the clinical development process. The aim of the Patient Engagement in Clinical Development Service is to facilitate patient involvement before a study's protocols are finalised to help make commercial clinical research more patient-friendly, and achieve better recruitment and retention in the long term.
Being inclusive in Public Involvement in Health Research
Created on Monday, 18 Mar 2019.
NIHR INVOLVE have published 'Being Inclusive in Public Involvement in Health Research guide'. It highlights twelve things to consider when planning your public involvement.
BAME toolkit toolkit to increase participation in health and social care research
Created on Thursday, 14 Mar 2019.
This toolkit aims to capture such best practice and provide researchers with a framework on how to improve the participation of BAME groups in research.
Use the toolkit to develop more relevant research questions, consider engagement of BAME groups in a more structured way, and provide tips on better participation and dissemination of research findings.
The toolkit covers:
- Section 1: Consideration of the communities which your research needs to involve.
- Section 2: Undertaking effective patient and public involvement (PPI) in research
- Section 3: Conducting effective recruitment in BAME communities
- Section 4: Ensuring cultural competency in the conduct of your research
- Section 5: Providing effective feedback to research participants
- Section 6: Recognising the importance of recruiting BAME communities in research: preparing a grant application
- Top Tips
guidance on the roles and responsibilities of PPI Co-applicants
Created on Wednesday, 06 Mar 2019.
The guidance on the roles and responsibilities of PPI Co-applicants have now been published. Hopefully this will provide some much needed clarification on the subject.
Summary of key points:
- There is no formal requirement to include a public co-applicant as part of the research team.
- Where a public co-applicant is included in a study,a clear description of their role and the reasons why a public co-applicant is joining the team is required. This should express the differences in their role from that of other members of the public involved in the study. Without this information, the presence of a public co-applicant can be seen as tokenistic.
- The inclusion of a public co-applicant should not be the only contributionfrom members of the public. Good public involvement includes of a diverse range of views, rather than a single perspective.
New recommendations launched to improve researchers’ feedback to patients and the public shaping studies
Created on Monday, 11 Feb 2019.
Guidance for Researchers: Feedback is a new tool providing researchers advice on the best ways to ensure patients, carers, service users and members of public contributing to their work are kept informed of research progress and their input is formally acknowledged.
Public contributors are involved at all stages of the research cycle, from project design, board and panel membership, to taking part in analysis and dissemination. But research by PPI representatives from CLAHRC East of England, who developed the guide, reveals that one-in-five (19%) of public contributors never received feedback for their work.