Co-production is the new buzz word in research but many are unsure as to what it actually entails. Take a look at The SHARED study which is an example of how public co-researchers were involved in developing carer and patient-led recommendations for people with dementia or memory loss returning home from hospital. The article illuminates the experience of public and academic researchers in delivering this research together.
The new best practice guide is aimed at helping other researchers involve the public in communicating findings from the earliest stages of their projects and on the most challenging of subjects. It features a five-step process to present research information in a way that is shaped from the outset by people who will use it. The advice given ranges from initial scoping of the subject to planning and user-testing materials to present findings in a clear and accessible way.
Created on Tuesday, 21 Nov 2017. Posted in Public Involvement
Changes to HMRC regulations on ‘contractors and intermediaries’ have led to some institutions processing payments for involvement in research through PAYE. INVOLVE has discussed these changes with HMRC and the Dept of Health’s Tax Advisor, and produced an agreed statement along with INVOLVE’s understanding of how these regulations might relate to payment for involvement.
This guidance identifies some key principles and features involved in co-producing research. Co-producing research at its simplest means people working in partnership to design, develop and deliver research and knowledge. However Co-producing research is a way of working that requires
There is a need for the authors of research reports to be able to communicate their work clearly and effectively to readers who are not familiar with the research area. Because many researchers write using technical, specialised language, particularly in scientific reports, writing Plain English summaries (PESs) can be challenging. This study looked at how to improve the quality of PESs.
The quality of the three versions (original summary, rewritten summary and edited summary) were assessed in two ways. First, a group of people who were not specialists in the subject area read and rated how easy the summaries were to understand. Secondly, a well-known measure called the Flesch reading ease score to assess how easy the PESs were to read.
The results showed that the following methods resulted in the best readable PESs:
The full article can be read online in the BioMed Central Research Involvement and Engagement Journal
Created on Thursday, 07 Sep 2017. Posted in Public Involvement
GRIPP 2 is a set of guidelines developed and agreed (via international consensus) as useful for helping researchers to report about their public involvement in journals. It is the first international effort to improve the quality and transparency of reporting about public involvement.
As such it provides researchers a useful tool when writing their application for research and dissemination strategy/impact. It also offers useful pointers about where public involvement impact on individual research studies can be reported.
A set of national, core standards and indicators for public involvement (PI) in research that can be used by organisations, research projects and individuals to improve the quality and consistency of PI has been developed. The next stage is to engage a wide range of interested groups, organisations and individuals to help review and improve the draft standards and indicators.
Created on Wednesday, 05 Jul 2017. Posted in Public Involvement
Public contributors bring a wealth of knowledge and insights to research based on their personal experiences as users of health and social care services and treatments. For example, who better to ask if a research question is relevant and important to patients and carers, than its potential beneficiaries? Or whether the frequency and timing of a series of tests proposed by researchers would actually be acceptable to the patients and carers that they plan to invite to take part in the research?
Each of our objectives are summarised in the Action Plan and cover the areas of:
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This project was commissioned by the James Lind Initiative to look at young people’s involvement in the design and delivery of NIHR studies. The report makes recommendations on how NIHR could find out more about who is involved in research and how, as well as what difference this involvement makes to research and to the young people involved.