This Methods Review aimed to describe the challenges in recruiting organisations and individuals for adult social care research and identify possible strategies to address them.
One of the main barriers to recruitment was variation among provider organisations, so recruitment strategies needed to be adjusted for different organisations, many of which lacked capacity for research participation. The rapidly changing nature of adult social care organisation and delivery in England also means that recruitment strategies often need to be adapted while research is in progress. Building partnerships between researchers and providers and offering financial and other incentives were suggested as mitigating strategies. In recruiting individuals, a lack of understanding of research benefit and organisations’ gatekeeping arrangements were common difficulties. Interviewees suggested: raising public awareness of adult social care research; building relationships with user/carer groups; using a variety of recruitment strategies and offering a range of participation routes. Researchers and funding bodies should allow sufficient time and resources to recruit representative samples. Researchers should share recruitment knowledge.
The Adult Social Care Outcomes Toolkit (ASCOT) is a novel method for determining the impact of services. ASCOT tools measure the domains of quality of life more affected by social care - key outcome is social care-related quality of life (SCRQoL).
In order to use ASCOT tools you have to register and obtain a licence.
Created on Wednesday, 09 Oct 2019. Posted in Social Care
The Adult Social Care Outcomes Framework (ASCOF) measures how well care and support services achieve the outcomes that matter most to people. The measures are grouped into four domains which are typically reviewed in terms of movement over time. Data is provided at council, regional and national level.
The toolkit aims to help those planning and shaping services and treatments for adult people with social care needs and their carers make informed decisions about which services and treatments to provide and how much they cost.
The toolkit is available here and is a collection of case studies looking at intervention, effectiveness, cost-effectiveness and the nature of evidence
Created on Thursday, 20 Dec 2018. Posted in Social Care
New NIHR blog from Professor Martin Knapp, Director of NIHR School for Social Care Research
Most readers of this blog will know someone who uses adult social care services. You may actually be that ‘someone’. Or you may be a carer. Many of the rest of you - if survey findings are accurate – will be seriously underestimating the likelihood that you will have social care needs yourself at some point.
Adult social care is the provision of personal and practical care and support that people may need due to ageing, illness, or disability, provided in a number of settings ranging from help in their own homes, to nursing homes, or in community settings such as day centres. Support is also provided to family and other carers. The likelihood that you might need these services is growing over time.
If only out of self-interest, therefore – although I hope that wouldn’t be the sole motivation – we will all want an adult social care system that is fit for purpose.
The system should be good at identifying social care needs in timely fashion, and responding to changes over time, and make sure it understands the preferences of individuals about how their needs are met and the personal strengths they bring to the care setting. It should recognise and support family and other unpaid carers. It should recognise people as individuals, engaging with them with respect and dignity. It should recruit, train and retain a skilled workforce. It should support that workforce with appropriate technology and other resources. It should recognise the enormous contributions that communities do and can make.
A high-performing social care system goes further. It ensures that every individual with social care needs - whatever their financial or family circumstances – has access to good quality support, and has a choice about what that support will be. A good social care system will also be funded fairly, and in a way that is sustainable over the long term.
And, importantly, it will be built on solid research evidence. That is why last week’s announcement by NIHR that it will fund a third phase of the School for Social Care Research (NIHR SSCR) is so welcome. Just under £20 million has been committed over 5 years to continue the work of the School. This includes £1.8 million specifically targeted on building research capacity: this is the exciting new NIHR Social Care Incubator.
Research helps. Note the careful choice of verb: not research ‘solves’ or ‘has all the answers’. Research is only one ingredient into decision-making. It offers evidence to be considered alongside other things. It helps decision-makers make difficult decisions.
Good research can address questions suggested by individual experience or prompted by wider contextual changes. Those latter might include population ageing, shifting societal priorities, cuts or boosts to public expenditure, technological innovation, breakthroughs in healthcare, changes in welfare benefit eligibility or housing policy, and even (whisper it quietly) possible workforce implications of Brexit.
So what does ‘good’ look like? Good research will include at least the following ingredients:
NIHR School for Social Care Research
These are among the principles that have underpinned the work of the School since it was established. Since 2009, NIHR SSCR has funded 128 studies, published methods and scoping reviews, held a series of very successful annual conferences, and organised numerous other events.
In the new phase, there will be seven member universities: Birmingham, Bristol, Kent, Kings College London, Manchester, York, and the London School of Economics and Political Science, which will lead on coordination and management. I have the privilege of continuing as Director of the School.
What exactly gets researched by the School depends in part on our consultation: we listen to people who use services, carers, practitioners, managers, local authorities, organisations that provide services, third sector bodies and even other researchers!
Research themes might include:
None of this is set in stone. Indeed, the programme should evolve over time as new ideas and challenges emerge.
More than just NIHR SSCR
NIHR’s continuing commitment to SSCR is just part of a wider push to encourage and support research on adult social care. (NIHR does not fund research on child social care: this is the responsibility of the Department for Education.)
This is not a case of just adding the words ‘and social care’ every time an NIHR call or initiative mentions health research. The NIHR ‘push’ includes investing in research skills and researchers so that social care questions get suitably framed and answered. It is about making sure that commissioning panels and reviewers include people with expertise in social care. It is about working with local authorities and social care providers (the vast majority of which are in the private sector) to be ‘research-ready’ – indeed to be ‘research-hungry’. As the leading funder of social care research, NIHR has an enormous amount to contribute.
There are huge pressures on adult social care today. Needs and demands are rising, while public funding has been falling. There are growing numbers of self-funders, most of whom find it hard to understand the system. Many thousands of family and other unpaid carers face enormous challenges every day. Service providers often struggle to stay afloat.
The Government is expected to publish a Green Paper soon that will stimulate widespread debate about how social care should be funded, organised and accessed. NIHR-supported research can contribute enormously to this debate and to the future shaping of adult social care.