Created on Monday, 10 Feb 2020. Posted in Literature
This review brings together NIHR-funded research for and about health and social care services for people with learning disabilities. Work is needed to improve care for these people, who experience poorer health and die earlier than the general population. Many of these deaths could be prevented by public health interventions or better access to high quality care. This review features 23 recent studies with important findings for those who commission, deliver, work in and use these services. These range from qualitative research on user experience to randomised trials of complex new services. Many of these studies involved people with learning disability and family carers in the research and in delivering some of the interventions.
This review looks primarily at studies of health and social care services targeted at people with lived experience of learning disabilities and their families. It excludes studies specifically concerned with autism because these may relate to separate pathways and services. Although there is a small number of studies on services for children, most are on services for adults. The NIHR has funded many studies on the effectiveness of individual interventions, from drugs to psychological therapies, but the focus of this review is on services for people with learning disabilities. These interventions are only included where the study is also about how this works in the context of health and social care services.